Comments for

Comment on We Are Stronger Than We Seem by Amy Bornhoft

Amy Bornhoft — Sat, 04 Sep 2010 00:24:27 +0000

What a wonderful blog. I am sorry to hear about your son. You have been doing it for a long time it just somehow seems different when it is “official”. I love Pooh and the song about Pooh and Christopher Robin. By chance was that in the movie? I sometimes think Madison’s twind may be a sensory seeker, opposite of Madison. Luckily, they all three rarely explode at the same time so I can focus on one melt down at a time. I wish you peace on your new journey…just always remember you have to take care of you too. If you are not ok, they won’t be either. Thanks for sharing such wonderful words and inspiration.

Comment on We Are Stronger Than We Seem by Julie

Julie — Fri, 27 Aug 2010 16:35:40 +0000

Thank you for this. My two year old has just been diagnosed with SPD. I, too, knew since birth that something wasn’t quite right. Also having struggled with postpartum depression, I know worry about the “what if’s” of having another.. ‘what if’ s/he has the same struggles as our son. This post helped me put things a little more into perspective. Thanks.

Comment on It Will Get Better by Amy Divell

Amy Divell — Tue, 24 Aug 2010 17:50:02 +0000

I just happened upon this site and not sure where to begin with our 5 yr old…thanks for the encouraging news that this “issue” does get better with time…aprox at the age of 2 and has only progressed- our daughter just started with using furniture as a trampoline,acting hyperactive/fidgets,chews on some of the most ungawdly stuff like shes teething,couldnt tolerate any type of restraint (clothing,seat belts,socks,shoes etc)on her,now shes having outbursts as well as tantrums that she didnt have before as well as other actions that i didnt have with my 19 or 25 yr old as children (though i have been told sensory issues can be passed down and only seems to get worse with each child). Ive read books on sensory problems and spirited children i’ll assume this isnt one in the same? I finally broke down and confessed to her doctor were having problems with her (family members used to say it was because she heard alot of argueing her first few years,others wandered if it wasnt from a few bumps on her head when playing or her immunizations??)now the doctor wants her to go to a neurologist and behavior specialist…should she? Im trying desperately to NOT have to use any medications for her problem…..Where do I start? are there any local support groups in Brooksville Florida? Can this be “worked with” without meds? How should i discipline her? nothing seems to work as far as discipline on her shes very strong willed and very intelligent for 5(right now i just “redirect her in other ways when ever possible). Would very much like to hear from others with children having this problem….

Comment on It Will Get Better by Amber

Amber — Sun, 22 Aug 2010 18:23:41 +0000

Wow, I really needed to hear this today. My DS started kindergarten this week and was sent to the principal’s office on day two for hitting. I had requested an I.E.P. before school started because my DS has really started escalating this summer even though we’ve been in therapy for over a year. The teacher and vice-principal had no idea what SPD was and tried to avoid the subject of an I.E.P by saying “SPD symptoms sound like typical 5-year-old behavior”. I couldn’t help myself, I started sobbing at the thought that I had put my son into a situation with 28 other kids and administrators who knew NOTHING about SPD. They finally took pity on me when they saw me crying and agreed that we would have a meeting with the school psychologist, vice-principal, teacher and others next week about a plan for my son. That evening, I literally wailed with frustration at the apathy in the public schools. Sometimes I feel like there is no one out there who understands or cares. So it’s nice to read that there is hope that this will improve if I keep doing what I know to be right.

Comment on It Will Get Better by Hartley Steiner

Hartley Steiner — Sat, 21 Aug 2010 03:23:26 +0000

Thank you to everyone who left a comment — I love knowing that we are all on the same journey, just on different parts! I wish you all speed between diagnosis and “It gets better”. You are all on your way — Hang in there!

Hartley
http://www.hartleysboys.com

PS. Emily? I thought we *are* best friends? No?

Comment on It Will Get Better by Tray

Tray — Thu, 19 Aug 2010 22:27:48 +0000

Thank you, thank you thank you! Your email was EXACTLY what I needed to read today. We’ve just begun our journey. and I am feeling really overwhelmed as my daughter only recently qualified for early intervention services for SPD. It has been quite a struggle for our family on many levels. To add to our frustration, I just got home from a meeting (battle) with the staff at my daughter’s (22 mos) daycare. I was basically told that if she isn’t developmentally ready to transition to the next group in 4 months, we’ll have to find alternative care. It was all I could do to hold myself together today.

Thanks again

Comment on It Will Get Better by Sheryl Hill

Sheryl Hill — Mon, 16 Aug 2010 19:32:19 +0000

I too am crying and typing. My daughter, age 24, left an abusive husband and lives at home again. As a full-time college student, I offered to babysit Maddie whenever she needed me. We have recently found out she has SPD but our luck is that she is only two years old. I know it never gets “better” but we are looking forward to OT, speech pathology as well as family counseling. After raising two children, I recognized that Maddie’s actions were definitely not routine. Just cutting her nails, brushing her hair or even sitting still for more than 30 seconds become manic and difficult. Yes, many friends and family think she will “grow out of it.” When you mention SPD, their eyes glaze over and of course they have never heard of it. We are looking forward to finding a support group for parents to help my daughter cope and meet with others who also have long, difficult days. Play dates have been unsuccessful as Maddie is not interested in other children and often just walks right by them, even at the Little Gym. Thank you for your words of wisdom as they came on a day that we both needed them. I look forward to purchasing your book. With luck and hard work we can see the light at the end of the tunnel. A grateful Grandma

Comment on It Will Get Better by Tracy Whalen

Tracy Whalen — Mon, 16 Aug 2010 19:29:54 +0000

Wow, this sounds like my house. I have 2 kids with Sensory Processing Disorder and they are so different. My 9 year old is able to self regulate a little better now,but can still be very impulsive and unpredictable. My 7 year old is the queen of tantrums and even that has gotten a little better, but my days always need to be planned out so she knows what to expect and she doesn’t know what to do when she’s overstimulated. It’s nice to hear it will get better.

Comment on It Will Get Better by Bridget

Bridget — Mon, 16 Aug 2010 19:08:13 +0000

Thank you Drying my eyes too, and thankful that I am not alone in this challenging journey.

Comment on It Will Get Better by lelah kimball

lelah kimball — Fri, 13 Aug 2010 16:10:54 +0000

Before I could reply, I had to wait until I stopped crying. Thank you. I needed that. When someone tells me “it will get better” or “this too shall pass”, I want to to scream “Yeah!? When!? How!?” And, in fact, do ask those questions–much more nicely than I’m feeling inside–at times. I often feel alone on an island. No one gets what a day entails, especially with three other little boys (one just 6 months old) that have needs of their own and a husband who travels just too damn much. How difficult everyday things are, like a trip to the grocery store when we run out of milk. Oh, and those people who give those looks! You just want to pick up the nearest item and send it flying at their head and scream: “You don’t get it! I can’t control it. HE can’t control it. It’s out of our hands.” In many ways I am lucky. We have a wonderful preschool who hasn’t kicked him out because he wasn’t potty trained at 3, or 4, or still at 5. I have found the elementary school (thanks in part to my hyper-volunteering) who is educating themselves and willing to help. Never underestimate the power of making copies or cutting out things at home gives you in a school. Yet, I do cry most nights because I just don’t know how I will get through another day. I do now believe, it will get better–some day.